Long Covid Information Resources

New information and research about the longer-term effects of Covid-19 emerge at a rapid pace and new resources are being made available all the time. This page provides examples of some of these resources and links to other wider sources of information; it is not intended to be exhaustive.

Please note, the QNI is not responsible for the content of third-party documents or links shared on our website. Information is presented for information only and does not necessarily imply endorsement of any of the views expressed.

If you know of a relevant resource, or an updated version, please contact us.

Support for Healthcare Practitioners

• Living with Long Covid Resource – a resource for nurses working in the community and primary care, developed by The QNI to support the knowledge base and practice around ‘Long Covid’, or Post-Covid Syndrome.
• Long Covid Nurses and Midwives UK is a group of nurses and midwives in the UK, living with Long Covid. Their aim is to support, raise awareness, advocate and direct those living with Long Covid to useful resources. The QNI is one of the trusted partner organisations of the group.
• Supporting Health Care heroes UK is an organisation set up to provide support for healthcare heroes suffering with Long Covid. The resource has many links and blogs from NHS health care staff telling their stories. The site also has links to research and evidence about the condition.
• Explore Long Covid experiences and case studies collated by The QNI.
• Clinical Post-Covid Society – a joint initiative between NHS England and British Society of Physical and Rehabilitation Medicine (BSPRM). Working to develop and showcase work on long covid and rehabilitation linking to experience of managing Chronic Fatigue syndrome and Myalgic encephalomyelitis (CFS / ME) and other conditions.
• Office for National Statistics (ONS) data and analysis reports on Long Covid (updated monthly). Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 30 March 2023.

Policy and Guidance

• Long Covid modules available on the HEE e-lfh platform
• Post COVID Services – elearning for healthcare (e-lfh.org.uk)
• NHS England (2022) Long COVID: A framework for nursing, midwifery, and care staff
• NHS England Nursing Resources and Care Pathways for Long Covid:
  • Nursing General Long COVID Pathway
  • Nursing General Long COVID Pathway Resources
  • Nursing Long COVID – Breathlessness Pathway
  • Nursing Long COVID – Fatigue Brainfog Sleep
  • See this YouTube video which clarifies the resources development.
• NHS England » The NHS plan for improving long COVID services
• NHS England » Long COVID: Advice and resources for healthcare professionals in primary care
• NHS England » National commissioning guidance for post-COVID services
• NICE 2020 Overview | COVID-19 rapid guideline: managing the long-term effects of COVID-19 | Guidance | NICE (updated January 2024) 
• The road to renewal: five priorities for health and care, report by The King’s Fund.

General resources

• Royal College of Speech and Language Therapy Long Covid Resources 
• Recovering from COVID-19: Post viral-fatigue and conserving energy – Guidelines from the Royal College of Occupational Therapists (RCOT)
• RCSLT report on Long COVID and speech and language therapy | RCSLT
• Open access chapters in COVID-19 and Speech-Language Pathology edited by Professor Louise Cummings
• Chartered Society of Physiotherapy (CSP) Community rehabilitation and recovery services portal (csp.org.uk)
• Breathing techniques videos from physiotherapists:
  • Strategies to improve breathing in Long Covid patients – Physiotherapist from UCLH – YouTube
  • Breathlessness after COVID-19 – helpful techniques – Physiotherapist from Oxford Health FT – YouTube
• Long Covid in Children and Young People – guidance by SAPHNA, November 2021
• COVID-19 and School Closures: One year of education disruption – UNICEF DATA 2021
• What helps people with Long COVID? A co-production project -London South Bank University (lsbu.ac.uk). 2022. Resources and materials to help service design from; people living with Long COVID, carers, and others NHS, charity sectors and communities.

Workforce, Society Impact and Occupational Health

• COVID-19 return to work – a guide for recovering workers (SOM, 2021)
• Long COVID and Return to Work – What Works (som.org.uk)
• NHS England » Guidelines for supporting our NHS people affected by Long COVID
• NMC revalidation for Registrants with Long Covid blog on Supporting Health Care Heroes UK.
• RCN resource for managers: Supporting staff who are living with long COVID | Royal College of Nursing (rcn.org.uk).
• COVID-19 and School Closures: One year of education disruption – UNICEF DATA 2021.