Long Covid Information Resources

New research about the longer-term effects of Covid-19 is being undertaken by scientists and clinicians at a rapid pace, and new information resources are being made available all the time.

If you know of a relevant resource, or an updated version, please contact us.

Please note, the QNI is not responsible for the content of third-party documents or links shared on our website. Information is presented for information only and does not necessarily imply endorsement of any of the views expressed.

‘Living with Long Covid’

This is a resource for nurses working in the community and primary care. The document was developed to support nurses’ knowledge base and practice around ‘Long Covid’, or Post-Covid Syndrome.

Long Covid Nurses and Midwives UK is a group of nurses and midwives in the UK, living with Long Covid. Their aim is to support, raise awareness, advocate and direct those living with Long Covid to useful resources. The QNI is one of the trusted partner organisations of the group.

Office for National Statistics (ONS) data and analysis reports on Long Covid (updated monthly).

Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 30 March 2023.

Policy and Guidance

• Long Covid modules available on the HEE e-lfh platform
• Post COVID Services – elearning for healthcare (e-lfh.org.uk)
• NHS England (2022) Long COVID: A framework for nursing, midwifery, and care staff
• NHS England » Guidelines for supporting our NHS people affected by Long COVID  
• NHS England » The NHS plan for improving long COVID services
• NHS England » Long COVID: Advice and resources for healthcare professionals in primary care
• NHS England » National commissioning guidance for post-COVID services
• NICE 2020 Overview | COVID-19 rapid guideline: managing the long-term effects of COVID-19 | Guidance | NICE 
• Recovering from COVID-19: Post viral-fatigue and conserving energy – Guidelines from the Royal College of Occupational Therapists (RCOT)
• Chartered Society of Physiotherapy (CSP) Community rehabilitation and recovery services portal (csp.org.uk)

General resources

• The road to renewal: five priorities for health and care, report by The King’s Fund
• APPG Long Covid Report March 2022
• Breathing techniques videos from physiotherapists:
  • Strategies to improve breathing in Long Covid patients – Physiotherapist from UCLH – YouTube
  • Breathlessness after COVID-19 – helpful techniques – Physiotherapist from Oxford Health FT – YouTube
• Your COVID Recovery (NHS) – an online resource for the public
• Long Covid in Children and Young People – guidance by SAPHNA, November 2021
• What helps people with Long COVID? A co-production project -London South Bank University (lsbu.ac.uk). 2022. Resources and materials to help service design from; people living with Long COVID, carers, and others NHS, charity sectors and communities.
• Guidance: Identifying speech and language therapy needs post COVID-19 – The Royal College of Speech and Language Therapists.

Workforce and Occupational Health

• COVID-19 return to work – a guide for recovering workers (SOM, 2021)
• Long_COVID_and_Return_to_Work_What_Works.pdf (som.org.uk)
• Supporting Health Care heroes UK is an organisation set up to provide support for healthcare heroes suffering with Long Covid. There are a number of blogs linking to research and evidence about the condition. One specifically on NMC revalidation for Registrants with Long Covid

Neurological symptoms, ‘brain fog’ cognitive impairment and chronic fatigue

ONS data indicates fatigue is the most common symptom reported by individuals’ experiencing long COVID and then difficulty concentrating. These symptoms fluctuate throughout the day which adds to the frustration. There are a number of resources:

• Recovering from COVID-19: Post viral-fatigue and conserving energy 
• Language and cognition are increasingly an issue for those with Long Covid
• Cognition and language Royal College of Speech and Language therapy (RCSLT) report on long COVID and speech and language therapy
• There are a number of open access chapters in this book, COVID-19 and Speech-Language Pathology Edited by Professor Louise Cummings who presented to the network in July 2022

Wider Impact of Covid-19

• COVID-19 and School Closures: One year of education disruption – UNICEF DATA 202 
• The Sexual and Reproductive Health of Adolescents and Young Adults During the Covid-19 Pandemic: EBSCOhost (oclc.org).